Вести.Ru and the Russian aid Fund have teamed up to help seriously ill children. In the framework of the project we talk about the children, their parents, who are in trouble, sorrow and need, desperate to find money for the treatment. There is nothing worse than suffering child – and nothing more joyful than his recovery. Every week we tell stories about children to raise funds for their treatment. Without your help the children can not cope.
Today we talk about Litheos year-old Alice from Novosibirsk.
the girl has osteogenesis imperfecta – a severe congenital disorder of increased bone fragility. Accurate diagnosis Alice put not immediately before that, she had suffered a lot of fractures, obtained simply from careless or clumsy movements. Due to fractures of the Alice can not develop normally physically, in their one and a half years just learned to sit. It is necessary to continue the comprehensive treatment in the clinic, global medical Systems (GMS Clinic, Moscow), where she has already completed three courses, fractures began to happen less frequently, had a chance to put Alice on her feet. Treatment should continue, but the girl’s parents no way to pay for it.
a letter of Mary Litheos, mother Alice: “the First turning point for Alice was when she turned a month old, the left handle broke during a routine medical examination. In four months, there was a fracture of the tibia. No sooner had the bone to grow together, as broken again. A geneticist explained to us that my daughter’s bones porous and very fragile, directed us to the city hospital. But there is no cure offered, and fractures lasted ten months my daughter broke her hip and arm while trying to roll over. And a half years Alice suffered 15 fractures! We went to a specialty clinic, global medical Systems (GMS Clinic, Moscow). There Alice showed severe genetic disease “osteogenesis imperfecta”. With the aid of Rusfond, we have three times took place in Moscow drug treatment pamidronate that growingem bones. Thanks to everyone who helped us! Alice’s condition has improved, fractures became less daughter alone sits. But Alice was able to walk, it is necessary to continue the treatment. To pay it we can not – we have two children, my husband is unstable and low wages. Please help!”
To save Alice Litheos not enough RUB 179 277
Alena Gavrila, pediatrician of the Center for congenital disorders, Clinic global medical Systems (GMS Clinic, Moscow): “Without a complex treatment of children with this form of the disease, like Alice, have virtually no chance to stand up and learn to walk without support. As the therapy with pamidronate in combination with physical rehabilitation, the girl began conducting at an early age, the fractures began to happen less, Alice actively acquires new motor skills. Treatment should continue, and we hope that in the future she will be able to walk independently and will develop, keeping up with peers”.
Cost of a course of treatment 544 320 RUB
42 297 RUB gathered viewers GTRK “Novosibirsk”
19 920 RUB gathered viewers “NSK 49”
302 826 RUB gathered readers infopro54.ru, tayga.info and rusfond.ru
missing 277 179 RUB
to HELP ALICE
Rusfond (the Russian aid Fund) was established in the fall of 1996 for the help to authors of desperate letters in “Kommersant”. Having checked up letters, we place them in the “y” on the sites rusfond.ru, kommersant.ru in the air of RTR and radio “Faith” in social networks, as well as in 147 print, television and online media. Possible transfers from the Bank cards, electronic cash and the SMS, including from abroad (details on rusfond.ru). We just help you to help.Just collected more than 14,600 bn In 2020 (10 June) collected 539 099 206 RUB, the assistance received 474 of a child. Rusfond is the winner of the national award “Silver Archer” for 2000, included in the register of NGOs implementing the public utility services. In 2019 Rusfond won a presidential grant for the project “Coincidence. Expedition marrow donor”, and its national RDCM presidential grant for the project “Academy of bone marrow donations,” the grant of mayor of Moscow for the project “Save a life – become a bone marrow donor” and a grant from the Department of labor and social protection of population of Moscow for the project “Capital of twins.” The President of the Russian aid Fund Lev Ambinder – laureate of the State prize of the Russian Federation.
Fund Address: 125315, Moscow, and/I 110;
rusfond.ru; e-mail: firstname.lastname@example.org
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Phone: 8-800-250-75-25 (toll-free in Russia), 8 (495) 926-35-63 from 10:00 to 20:00