Вести.Ru and the Russian aid Fund have teamed up to help seriously ill children. In the framework of the project we talk about the children, their parents, who are in trouble, sorrow and need, desperate to find money for the treatment. There is nothing worse than suffering child – and nothing more joyful than his recovery. Every week we tell stories about children to raise funds for their treatment. Without your help the children can not cope.
Today we talk about 16-year-old Roma Vasiliev of St. Petersburg.
the boy with acute lymphoblastic leukemia in the most severe form, the disease is complicated by genetic damage – the Philadelphia chromosome. Long-term treatment and bone marrow rum is not helped: the leukemia returned. The boy was able to overcome three of the relapse, and is now fighting with the fourth. The only chance for the salvation of the Roma – the treatment of modern and very expensive drug from the category of monoclonal antibodies. Parents managed to collect only a portion of the required amount.
a letter From Evgenia Sergeeva, Mama Roma, “Son got sick at the end of 2015, he lost a lot of weight, temperatures, complained of headaches and pain in the legs. We went to the clinic, and the pediatrician prescribed antibiotics from SARS. Medication did not help, and only when Roma took a blood test, it turned out that was a big trouble! Blood son was diagnosed with the tumor cells, was taken to the hospital for examination. After the bone marrow biopsy I was diagnosed with blood cancer. In addition, Roma have found a rare genetic abnormality – the Philadelphia chromosome, which worsens the prognosis. We were in shock, but not for a moment doubt that will cure your son! Roma completed high-dose chemotherapy, and the cancer retreated. We thought about the disease you can forget, but in 2018, the leukemia returned. Rum cure was a bone marrow transplant, the donor for which was Romin dad. Alas, the leukemia did not give up. Roma have already vanquished three of relapse, and is now fighting with the fourth. The only chance for salvation – treatment with modern preparation from the category of monoclonal antibodies, but it is a very expensive drug, and buying it need. We managed to raise part of the sum, but the whole just does not pull! Please help to save my son!”
To save Roma Vasilyev’s not enough RUB 1 040 271
Hematologist in National medical research center of Oncology named after N. N. Petrov Anton Subora (Saint Petersburg): “In connection with severe illnesses Roma required therapy for drug blinatumomab. It is highly effective for therapy of acute leukemia, allowing to achieve a sustained remission of the disease. But this drug is not purchased at public expense”.
Cost of the medicine 537 4 016 RUB
2 095 496 RUB gathered parents Roma
815 520 RUB. was collected by the viewers of TV “St. Petersburg”
585 729 RUB gathered readers MR7.ru and rusfond.ru
Not enough RUB 1 040 271
to HELP ROMA
Rusfond (the Russian aid Fund) was established in the fall of 1996 for the help to authors of desperate letters in “Kommersant”. Having checked up letters, we place them in the “y” on the sites rusfond.ru, kommersant.ru in the air of RTR and radio “Faith” in social networks, as well as in 147 print, television and online media. Possible transfers from the Bank cards, electronic cash and the SMS, including from abroad (details on rusfond.ru). We just help you to help. Just collected over 14,631 bn In 2020 (18 June) collected 569 687 242 RUB, the assistance received 490 children. Rusfond is the winner of the national award “Silver Archer” for the year 2000 is included in the register of NGOs – performers of public utility services. In 2019 Rusfond won a presidential grant for the project “Coincidence. Expedition marrow donor”, and its national RDCM presidential grant for the project “Academy donation bone marrowa” grant of the mayor of Moscow for the project “Save a life – become a bone marrow donor” and a grant from the Department of labor and social protection of population of Moscow for the project “Capital of twins.” The President of the Russian aid Fund Lev Ambinder – laureate of the State prize of the Russian Federation.
Fund Address: 125315, Moscow, and/I 110;
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Phone: 8-800-250-75-25 (toll-free in Russia), 8 (495) 926-35-63 from 10:00 to 20:00